As I’ve written numerous times, when I first heard the phrase congenital heart defects from the coroner, my husband and I reached for our dictionary to look it up. The dictionary was no help, but I surmised it was a heart problem present at birth.
A few days after Cora’s funeral, my search to find out what happened to her started. I screamed out for help through social media, and my pleas were echoed and carried by retweets on Twitter and sharing my blog. People reached out, and I started to learn a bit, but still felt alone and confused.
Then finally a familiar face popped up. Someone I could trust. Someone I knew from before. Lisa and I first chatted because we both were freelance writers, at least a year before I was even pregnant with Cora. I think I knew her son was ill, but didn’t know the details. We lost touch, but through my pleas, she found me. She hasn’t left my side since. When things get confusing, I know she’s there. She was the first person I remember reaching out to me from the congenital heart defect community. She helped me find answers and lead me to more support.
She shared my story over and over because she knew it’s what I wanted at the time.
I wish everyone that so suddenly finds out about CHD, rather from a surgeon about to operate on their baby or from the coroner had a friendly face familiar with that world as a guide.
Today her little Owain is having open heart surgery. I can’t be with her to pace the halls or silently sit in the waiting room. I can’t be that light that she was to me. But, I can ask everyone to think of her today as her 3-year-old son undergoes the Fontan. I can return the favor and let her know that I’m a familiar face, out here, thinking of her.
I know Friday’s are frantic, but if you have a moment, could you stop by her blog to let her know you’re thinking of her and praying for Owain?